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IAGG/IAGG GARN International Survey of End-of-Life Care in Nursing Homes.

Identifieur interne : 000A56 ( Main/Exploration ); précédent : 000A55; suivant : 000A57

IAGG/IAGG GARN International Survey of End-of-Life Care in Nursing Homes.

Auteurs : Cara L. Wallace [États-Unis] ; Daniel Swagerty [États-Unis] ; Mario Barbagallo [Italie] ; Bruno Vellas [France] ; Heung Bong Cha [Corée du Sud] ; Iva Holmerova [République tchèque] ; Birong Dong [République populaire de Chine] ; Raymond Koopmans [Pays-Bas] ; Alfonso J. Cruz-Jentoft [Espagne] ; Luis Miguel Gutierrez Robledo [Mexique] ; Juan Cuadros Moreno [Mexique] ; Ramzi Hajjar [Liban] ; Jean Woo [République populaire de Chine] ; Hidenori Arai [Japon] ; Jiro Okochi [Japon] ; Renuka Visvanathan [Australie] ; Samia A. Abdul-Rahman [Égypte] ; Ashish Goel [Inde] ; Andrea Moser [Canada] ; Yves Rolland [France] ; Angela M. Abbatecola [Italie] ; Marcello Russo [Italie] ; John E. Morley [États-Unis]

Source :

RBID : pubmed:28549702

Abstract

This article reports the findings of a survey on end-of-life (EOL) care in nursing homes of 18 long-term care experts across 15 countries. The experts were chosen as a convenience-based sample of known experts in each country. The survey was administered in 2016 and included both open-ended responses for defining hospice care, palliative care, and "end of life," and a series of questions related to the following areas-attitudes toward EOL care, current practice and EOL interventions, structure of care, and routine barriers. Overall experts strongly agreed that hospice and palliative care should be available in long-term care facilities and that both are defined by holistic, interdisciplinary approaches using measures of comfort across domains. However, it appears the experts felt that in most countries the reality fell short of what they believed would be ideal care. As a result, experts call for increased training, communication, and access to specialized EOL services within the nursing home.

DOI: 10.1016/j.jamda.2017.04.002
PubMed: 28549702


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Le document en format XML

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<name sortKey="Abdul Rahman, Samia A" sort="Abdul Rahman, Samia A" uniqKey="Abdul Rahman S" first="Samia A" last="Abdul-Rahman">Samia A. Abdul-Rahman</name>
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<name sortKey="Abbatecola, Angela M" sort="Abbatecola, Angela M" uniqKey="Abbatecola A" first="Angela M" last="Abbatecola">Angela M. Abbatecola</name>
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<name sortKey="Koopmans, Raymond" sort="Koopmans, Raymond" uniqKey="Koopmans R" first="Raymond" last="Koopmans">Raymond Koopmans</name>
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<country xml:lang="fr" wicri:curation="lc">Pays-Bas</country>
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<name sortKey="Cruz Jentoft, Alfonso J" sort="Cruz Jentoft, Alfonso J" uniqKey="Cruz Jentoft A" first="Alfonso J" last="Cruz-Jentoft">Alfonso J. Cruz-Jentoft</name>
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<name sortKey="Moreno, Juan Cuadros" sort="Moreno, Juan Cuadros" uniqKey="Moreno J" first="Juan Cuadros" last="Moreno">Juan Cuadros Moreno</name>
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<nlm:affiliation>Instituto Nacional de Geriatría, Institutos Nacionales de Salud de México, San Jerónimo Lídice, Mexico.</nlm:affiliation>
<country xml:lang="fr">Mexique</country>
<wicri:regionArea>Instituto Nacional de Geriatría, Institutos Nacionales de Salud de México, San Jerónimo Lídice</wicri:regionArea>
<wicri:noRegion>San Jerónimo Lídice</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Hajjar, Ramzi" sort="Hajjar, Ramzi" uniqKey="Hajjar R" first="Ramzi" last="Hajjar">Ramzi Hajjar</name>
<affiliation wicri:level="1">
<nlm:affiliation>Geriatric Medicine and Palliative Care, American University of Beirut Medical Center, Beirut, Lebanon.</nlm:affiliation>
<country xml:lang="fr">Liban</country>
<wicri:regionArea>Geriatric Medicine and Palliative Care, American University of Beirut Medical Center, Beirut</wicri:regionArea>
<wicri:noRegion>Beirut</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Woo, Jean" sort="Woo, Jean" uniqKey="Woo J" first="Jean" last="Woo">Jean Woo</name>
<affiliation wicri:level="4">
<nlm:affiliation>Chinese University of Hong Kong, Hong Kong, China.</nlm:affiliation>
<country xml:lang="fr">République populaire de Chine</country>
<wicri:regionArea>Chinese University of Hong Kong, Hong Kong</wicri:regionArea>
<orgName type="university">Université chinoise de Hong Kong</orgName>
<placeName>
<settlement type="city">Sha Tin</settlement>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Arai, Hidenori" sort="Arai, Hidenori" uniqKey="Arai H" first="Hidenori" last="Arai">Hidenori Arai</name>
<affiliation wicri:level="1">
<nlm:affiliation>Deputy Director, National Center for Geriatrics and Gerontology, Obu, Japan.</nlm:affiliation>
<country xml:lang="fr">Japon</country>
<wicri:regionArea>Deputy Director, National Center for Geriatrics and Gerontology, Obu</wicri:regionArea>
<wicri:noRegion>Obu</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Okochi, Jiro" sort="Okochi, Jiro" uniqKey="Okochi J" first="Jiro" last="Okochi">Jiro Okochi</name>
<affiliation wicri:level="1">
<nlm:affiliation>Tatsumanosato Geriatric Health Services Facility, Daito, Japan.</nlm:affiliation>
<country xml:lang="fr">Japon</country>
<wicri:regionArea>Tatsumanosato Geriatric Health Services Facility, Daito</wicri:regionArea>
<wicri:noRegion>Daito</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Visvanathan, Renuka" sort="Visvanathan, Renuka" uniqKey="Visvanathan R" first="Renuka" last="Visvanathan">Renuka Visvanathan</name>
<affiliation wicri:level="1">
<nlm:affiliation>Adelaide Geriatrics and Training with Research in Aged Care (GTRAC) Centre, University of Adelaide and the Aged and Extended Care Services, Queen Elizabeth Hospital, Adelaide, Australia.</nlm:affiliation>
<country xml:lang="fr">Australie</country>
<wicri:regionArea>Adelaide Geriatrics and Training with Research in Aged Care (GTRAC) Centre, University of Adelaide and the Aged and Extended Care Services, Queen Elizabeth Hospital, Adelaide</wicri:regionArea>
<wicri:noRegion>Adelaide</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Abdul Rahman, Samia A" sort="Abdul Rahman, Samia A" uniqKey="Abdul Rahman S" first="Samia A" last="Abdul-Rahman">Samia A. Abdul-Rahman</name>
<affiliation wicri:level="1">
<nlm:affiliation>Founding member of the Egyptian Society of Geriatrics and Gerontology, Geriatrics and Gerontology Department, Faculty of Medicine, Ain Shams University, Cairo, Egypt.</nlm:affiliation>
<country xml:lang="fr">Égypte</country>
<wicri:regionArea>Founding member of the Egyptian Society of Geriatrics and Gerontology, Geriatrics and Gerontology Department, Faculty of Medicine, Ain Shams University, Cairo</wicri:regionArea>
<wicri:noRegion>Cairo</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Goel, Ashish" sort="Goel, Ashish" uniqKey="Goel A" first="Ashish" last="Goel">Ashish Goel</name>
<affiliation wicri:level="1">
<nlm:affiliation>Department of Medicine, UCMS and GTB Hospital, Delhi, India.</nlm:affiliation>
<country xml:lang="fr">Inde</country>
<wicri:regionArea>Department of Medicine, UCMS and GTB Hospital, Delhi</wicri:regionArea>
<wicri:noRegion>Delhi</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Moser, Andrea" sort="Moser, Andrea" uniqKey="Moser A" first="Andrea" last="Moser">Andrea Moser</name>
<affiliation wicri:level="1">
<nlm:affiliation>Jewish Home for the Aged, Baycrest, Toronto, Canada.</nlm:affiliation>
<country xml:lang="fr">Canada</country>
<wicri:regionArea>Jewish Home for the Aged, Baycrest, Toronto</wicri:regionArea>
<wicri:noRegion>Toronto</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Rolland, Yves" sort="Rolland, Yves" uniqKey="Rolland Y" first="Yves" last="Rolland">Yves Rolland</name>
<affiliation wicri:level="3">
<nlm:affiliation>Gerontopole, Toulouse University Hospital-CHU, Toulouse, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Gerontopole, Toulouse University Hospital-CHU, Toulouse</wicri:regionArea>
<placeName>
<region type="region">Occitanie (région administrative)</region>
<region type="old region">Midi-Pyrénées</region>
<settlement type="city">Toulouse</settlement>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Abbatecola, Angela M" sort="Abbatecola, Angela M" uniqKey="Abbatecola A" first="Angela M" last="Abbatecola">Angela M. Abbatecola</name>
<affiliation wicri:level="1">
<nlm:affiliation>Azienda Sanitaria Locale (ASL) di Frosinone, Frosinone, Italy.</nlm:affiliation>
<country xml:lang="fr">Italie</country>
<wicri:regionArea>Azienda Sanitaria Locale (ASL) di Frosinone, Frosinone</wicri:regionArea>
<wicri:noRegion>Frosinone</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Russo, Marcello" sort="Russo, Marcello" uniqKey="Russo M" first="Marcello" last="Russo">Marcello Russo</name>
<affiliation wicri:level="1">
<nlm:affiliation>Azienda Sanitaria Locale (ASL) di Frosinone, Frosinone, Italy.</nlm:affiliation>
<country xml:lang="fr">Italie</country>
<wicri:regionArea>Azienda Sanitaria Locale (ASL) di Frosinone, Frosinone</wicri:regionArea>
<wicri:noRegion>Frosinone</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Morley, John E" sort="Morley, John E" uniqKey="Morley J" first="John E" last="Morley">John E. Morley</name>
<affiliation wicri:level="2">
<nlm:affiliation>Division of Geriatric Medicine, Saint Louis University School of Medicine, St. Louis, MO. Electronic address: morley@slu.edu.</nlm:affiliation>
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Missouri (État)</region>
</placeName>
<wicri:cityArea>Division of Geriatric Medicine, Saint Louis University School of Medicine, St. Louis</wicri:cityArea>
</affiliation>
</author>
</analytic>
<series>
<title level="j">Journal of the American Medical Directors Association</title>
<idno type="eISSN">1538-9375</idno>
<imprint>
<date when="2017" type="published">2017</date>
</imprint>
</series>
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<textClass></textClass>
</profileDesc>
</teiHeader>
<front>
<div type="abstract" xml:lang="en">This article reports the findings of a survey on end-of-life (EOL) care in nursing homes of 18 long-term care experts across 15 countries. The experts were chosen as a convenience-based sample of known experts in each country. The survey was administered in 2016 and included both open-ended responses for defining hospice care, palliative care, and "end of life," and a series of questions related to the following areas-attitudes toward EOL care, current practice and EOL interventions, structure of care, and routine barriers. Overall experts strongly agreed that hospice and palliative care should be available in long-term care facilities and that both are defined by holistic, interdisciplinary approaches using measures of comfort across domains. However, it appears the experts felt that in most countries the reality fell short of what they believed would be ideal care. As a result, experts call for increased training, communication, and access to specialized EOL services within the nursing home.</div>
</front>
</TEI>
<affiliations>
<list>
<country>
<li>Australie</li>
<li>Canada</li>
<li>Corée du Sud</li>
<li>Espagne</li>
<li>France</li>
<li>Inde</li>
<li>Italie</li>
<li>Japon</li>
<li>Liban</li>
<li>Mexique</li>
<li>Pays-Bas</li>
<li>République populaire de Chine</li>
<li>République tchèque</li>
<li>Égypte</li>
<li>États-Unis</li>
</country>
<region>
<li>Bohême centrale</li>
<li>Communauté de Madrid</li>
<li>Gueldre</li>
<li>Kansas</li>
<li>Midi-Pyrénées</li>
<li>Missouri (État)</li>
<li>Occitanie (région administrative)</li>
<li>Région capitale de Séoul</li>
</region>
<settlement>
<li>Madrid</li>
<li>Nimègue</li>
<li>Prague</li>
<li>Sha Tin</li>
<li>Séoul</li>
<li>Toulouse</li>
</settlement>
<orgName>
<li>Université chinoise de Hong Kong</li>
</orgName>
</list>
<tree>
<country name="États-Unis">
<region name="Missouri (État)">
<name sortKey="Wallace, Cara L" sort="Wallace, Cara L" uniqKey="Wallace C" first="Cara L" last="Wallace">Cara L. Wallace</name>
</region>
<name sortKey="Morley, John E" sort="Morley, John E" uniqKey="Morley J" first="John E" last="Morley">John E. Morley</name>
<name sortKey="Swagerty, Daniel" sort="Swagerty, Daniel" uniqKey="Swagerty D" first="Daniel" last="Swagerty">Daniel Swagerty</name>
</country>
<country name="Italie">
<noRegion>
<name sortKey="Barbagallo, Mario" sort="Barbagallo, Mario" uniqKey="Barbagallo M" first="Mario" last="Barbagallo">Mario Barbagallo</name>
</noRegion>
<name sortKey="Abbatecola, Angela M" sort="Abbatecola, Angela M" uniqKey="Abbatecola A" first="Angela M" last="Abbatecola">Angela M. Abbatecola</name>
<name sortKey="Russo, Marcello" sort="Russo, Marcello" uniqKey="Russo M" first="Marcello" last="Russo">Marcello Russo</name>
</country>
<country name="France">
<region name="Occitanie (région administrative)">
<name sortKey="Vellas, Bruno" sort="Vellas, Bruno" uniqKey="Vellas B" first="Bruno" last="Vellas">Bruno Vellas</name>
</region>
<name sortKey="Rolland, Yves" sort="Rolland, Yves" uniqKey="Rolland Y" first="Yves" last="Rolland">Yves Rolland</name>
</country>
<country name="Corée du Sud">
<region name="Région capitale de Séoul">
<name sortKey="Cha, Heung Bong" sort="Cha, Heung Bong" uniqKey="Cha H" first="Heung Bong" last="Cha">Heung Bong Cha</name>
</region>
</country>
<country name="République tchèque">
<region name="Bohême centrale">
<name sortKey="Holmerova, Iva" sort="Holmerova, Iva" uniqKey="Holmerova I" first="Iva" last="Holmerova">Iva Holmerova</name>
</region>
</country>
<country name="République populaire de Chine">
<noRegion>
<name sortKey="Dong, Birong" sort="Dong, Birong" uniqKey="Dong B" first="Birong" last="Dong">Birong Dong</name>
</noRegion>
<name sortKey="Woo, Jean" sort="Woo, Jean" uniqKey="Woo J" first="Jean" last="Woo">Jean Woo</name>
</country>
<country name="Pays-Bas">
<region name="Gueldre">
<name sortKey="Koopmans, Raymond" sort="Koopmans, Raymond" uniqKey="Koopmans R" first="Raymond" last="Koopmans">Raymond Koopmans</name>
</region>
</country>
<country name="Espagne">
<region name="Communauté de Madrid">
<name sortKey="Cruz Jentoft, Alfonso J" sort="Cruz Jentoft, Alfonso J" uniqKey="Cruz Jentoft A" first="Alfonso J" last="Cruz-Jentoft">Alfonso J. Cruz-Jentoft</name>
</region>
</country>
<country name="Mexique">
<noRegion>
<name sortKey="Gutierrez Robledo, Luis Miguel" sort="Gutierrez Robledo, Luis Miguel" uniqKey="Gutierrez Robledo L" first="Luis Miguel" last="Gutierrez Robledo">Luis Miguel Gutierrez Robledo</name>
</noRegion>
<name sortKey="Moreno, Juan Cuadros" sort="Moreno, Juan Cuadros" uniqKey="Moreno J" first="Juan Cuadros" last="Moreno">Juan Cuadros Moreno</name>
</country>
<country name="Liban">
<noRegion>
<name sortKey="Hajjar, Ramzi" sort="Hajjar, Ramzi" uniqKey="Hajjar R" first="Ramzi" last="Hajjar">Ramzi Hajjar</name>
</noRegion>
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<country name="Japon">
<noRegion>
<name sortKey="Arai, Hidenori" sort="Arai, Hidenori" uniqKey="Arai H" first="Hidenori" last="Arai">Hidenori Arai</name>
</noRegion>
<name sortKey="Okochi, Jiro" sort="Okochi, Jiro" uniqKey="Okochi J" first="Jiro" last="Okochi">Jiro Okochi</name>
</country>
<country name="Australie">
<noRegion>
<name sortKey="Visvanathan, Renuka" sort="Visvanathan, Renuka" uniqKey="Visvanathan R" first="Renuka" last="Visvanathan">Renuka Visvanathan</name>
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<country name="Égypte">
<noRegion>
<name sortKey="Abdul Rahman, Samia A" sort="Abdul Rahman, Samia A" uniqKey="Abdul Rahman S" first="Samia A" last="Abdul-Rahman">Samia A. Abdul-Rahman</name>
</noRegion>
</country>
<country name="Inde">
<noRegion>
<name sortKey="Goel, Ashish" sort="Goel, Ashish" uniqKey="Goel A" first="Ashish" last="Goel">Ashish Goel</name>
</noRegion>
</country>
<country name="Canada">
<noRegion>
<name sortKey="Moser, Andrea" sort="Moser, Andrea" uniqKey="Moser A" first="Andrea" last="Moser">Andrea Moser</name>
</noRegion>
</country>
</tree>
</affiliations>
</record>

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